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If you've ever been interested in joining
a caregiver support group, but find it difficult to attend a meeting,
online caregiver support groups may be for you. In our wired world,
there are hundreds of opportunities to connect with other caregivers
— to problem-solve, share information and gain support. Online
groups are very diverse — organized by disease specialty,
by caregiving topics and by format. Many caregivers report that
they appreciate the flexibility and greater anonymity of participation
in these groups and also value hearing from larger, more varied
and geographically diverse groups of people.
The following list includes some well-established
online groups. Before signing on, it's good to check each site's
guidelines for participation. Many sites give you the option of
responding to individual messages or posting to the group at large;
some allow you to receive daily messages in individual or digest
form. Make sure to note privacy policies, how to enroll and un-enroll,
and who sponsors the site. Some groups are "hosted" by
a professional and others are checked for content and/or conduct
by another member. All groups require some form of registration
before logging on, but be wary of any that charge a fee for participation
or those that are overly laden with product advertising or marketing.
To get you started, below are a few well-known
sites. However, there are many others. To find more, search the
Internet with the
following keywords: online caregiver support groups, caregiver
chat, or caregiver discussion forums.
You can also go to disease
specific sites. For example, type in brain injury, multiple sclerosis, or
Alzheimer's disease into your search field. You may easily find online discussion
groups or links
to other sites that offer online support by searching the
Internet.
Caregiver Support Groups, Discussion
Forums and Chat Groups
Family Caregiver Alliance —
Online Support Groups
www.caregiver.org
The Family Caregiver Alliance offers 4 different online support
groups:
Caregiver Online Group - an unmoderated group for families,
partners, and other caregivers of adults with various disorders.
Huntington's Disease and Movement Disorders Online Group -
for anyone living with HD, Parkinson's or another movement disorder.
LGBTQ Caring Community Online Support Group - Offers a forum
for LGBTQ caregivers of adults with chronic health problems to
discuss their unique issues.
Link2 Care Support Group - part of a secure website dedicated
to clients of California's Caregiver Resource Centers. The groups
are operated in a list-serve (e-mail) format. You may post to
individuals or to the entire group, and may elect to receive
messages individually or in a daily digest.
Caregiving.com Support Center
www.caregiving.com
Ten online groups for:
1. new caregivers,
2. seasoned caregivers,
3. caregivers transitioning out of their caregiving role,
4. male caregivers,
5. young adults affected
by a caregiving situation,
6. gays and lesbians caring for a parent and/or partner,
7. family members who support the primary caregiver,
8. family caregivers interested in discussing thier Christian
beliefs as they relate to
their caregiving roles,
9. family caregivers in the "sandwich generation" caring for aging
relatives while raising
a young family,
10. those grieving the loss of a family member or friend.
Family members and professionals are
encouraged to participate. A participating member monitors all groups,
and each group is in a list-serve (e-mail) format. Participants
send and receive e-mail to take part in discussions. This site also offers
a feature called "Ask the Experts" where questions on
different topics can be directed to professionals in that field.
Careguide.com — Discussion
Forums
www.careguide.com
Seven discussion forums organized
into different topic areas, including daily care,
finding and financing
care, disease and disability information, caregiving tips, and
product information. All discussions are moderated by a professional social
worker.
Detailed privacy policies, advice about using the forums
and guidelines for
participation.
Elder Care Online
www.ec-online.net
Hosts regular live chat sessions, an elder
care forum community message board and an "Ask the Experts"
feature, as well as information about resources local to the caregiver.
This site has well-articulated standards of conduct and guidelines
for being a community member" The Elder Care Forum community
Message Board is divided and subdivided into many areas, so those
with a very specific interest may find it here. There is also a
section with links to other sites for support.
National Alzheimer's Association
http://www.alz.org
At the National Alzheimer's
Association site you can share your thoughts and
experiences, ask questions and make connections (and maybe new
friends) through
their message boards.
The message boards are divided into
4 topics, depending on whether you are a
caregiver, a professional, an individual with Alzheimer's, or a
researcher. You can also
search past posts. To post messages you will need to create your own
account. All you
need is your name and a password to become a registered user.
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